A
Gift of Friendship
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Brandon
Nelson's parents decided to donate his heart valves after his
tragic death so another child could live. |
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In
the Face of Loss
In a
perfect world Tami Kastl and Melissa Haugen would probably never know
each other. In a perfect world Kastl's son Brandon would be preparing
for preschool, and Haugen's son Dayton would be a stranger to the
operating room. In the real world, both young mothers have faced some
of the toughest challenges a parent can face, and have developed a
unique friendship, borne of tragedy but strengthened by hope.
Tami Kastl
has vivid memories of the day in May 1998 when her 22-month-old son
Brandon was accidentally electrocuted by a ground wire: She remembers
the sinking feeling she got at the sight of the emergency vehicles
outside her home as she returned from the store.
She
remembers not having time to sit down at Yakima Memorial Hospital
before a physician informed her and her husband, Tom, that Brandon
couldn't be revived. She remembers clearly how she felt when the nurse
asked them if they would consider tissue donation. "I was still
in shock, but I didn't think twice," Kastl said. "It was not
a tough decision. I knew that even if I had lost my child, someone
else's child could live."
Tami and
Tom's conviction about donation partially stems from personal
experience. Twenty-five years ago, Tom's mother, Brandon's
grandmother, received a kidney transplant.
"I
have always felt very strongly about organ and tissue donation for
myself, but I never thought that I would have to make that decision
for my child," said Tami. "I just believe you don't need
them (organs and tissues) when you die, and donation gives someone
else a chance."
Hope
for Dayton
Melissa
Haugen's and Tom Drews' joy at the June 1998 birth of their second son
Dayton was tempered by concern. The healthy heartbeat the Minnesota
couple heard during Melissa's pregnancy masked a congenital heart
defect which threatened their newborn's life.
Dayton was
born with pulmonary atresia, which compromised blood flow from his
heart to his lungs, accompanied by a ventricular septal defect, or
hole in the heart, between the two lower chambers. Pediatric
cardiologist Dr. John Foker planned surgery to transplant an
artificial valve and correct the conditions when Dayton was just three
months old.
Just prior
to surgery, Dr. Foker became aware of the availability of a suitable
human heart valve which would offer considerable advantages over a
synthetic device.
"At
the time, I didn't understand the whole donation and transplantation
process," said Haugen.
After
nearly 12 hours of surgery, Dr. Foker informed Melissa and Tom that
though the surgery to correct Dayton's heart was successful, there had
been complications. Collateral vessels leading to Dayton's lungs were
not opened wide enough to allow sufficient blood flow and Dayton's
left lung had collapsed. Dayton would need additional surgery in the
future to correct the condition and possibly regular operations until
he is full grown.
Despite
his challenging start at life, Dayton enjoys the full life of a
toddler. "If you were to see him, you'd never know there's
anything wrong with him," said Haugen. "He's almost 30
pounds, he laughs, he plays."
The
Seeds of Friendship
In one of
their occasional conversations since Brandon's death, Kastl expressed
to Tissue Services Donation Specialist Shari Fowler an interest in
writing to the recipient of Brandon's heart valve. Working with Dr.
Foker's staff, Fowler learned that Dayton's family would welcome
correspondence, and the families agreed to share addresses. Letters
quickly gave way to telephone conversations and a unique bond was
formed.
"I
remember the first time she called me, I couldn't say 'thank you!'
enough times," said Haugen. "Without his (Brandon's) gift,
we don't know what Dayton's life would have been like."
"She
said she didn't know how she could ever repay me," said Kastl.
"I told her 'I didn't do it for you to repay me, I did it so that
your baby could live.'"
Though
separated by more than a thousand miles, Kastl and Haugen made a
connection through which both found strength. "They've had almost
a year and a half with Dayton that they might not otherwise have had.
That makes me feel so good," said Kastl.
For
Christmas 1998, Tami sent Dayton a stuffed "Barney" doll
which she had bought to give to Brandon. "
That
Barney is Dayton's favorite thing," said Haugen. "It's like
Brandon has been kind of a guardian angel for Dayton."
A
Christmas Wish Come True
Their
relationship took on new meaning when the two families met face to
face for the first time on "The Montel Williams Show." After
receiving letters from Haugen, producers invited the families to be on
a program focusing on extraordinary gifts that would air Christmas
Eve.
"Melissa
and I had talked so much on the phone, but meeting in New York kind of
made it more real," said Tami. "It was so great for us to
actually meet Dayton. To me, he was a lot like Brandon. He was so much
fun."
To foster
communication between the two families, program producers provided
Haugen with a personal computer and internet service. Melissa and Tami
now keep in touch through daily e-mail.
"Ever
since we met them in New York we have sort of a different
relationship," said Haugen. "When we left them at the
airport, I felt like I knew them all my life. They truly feel like
they're family."
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